100-Day Project: Getting Started

I’m still not sure what got me started, really. I’d been eyeing the “100 Day Project” idea for a while, assuming I’d focus on writing. I’ve always wanted to write. (Or most times, to have written.) And this goal- based structure seemed up my alley. But I was never to be able to find much momentum to start.

And then COVID hit, and I couldn’t bring myself to find energy for anything after long days of zoom meetings.

So when the 100 Day Project came around again a month ago, I decided to focus not on what I “should” do but what I wanted to learn. The shelter-in-place meant that we started taking daily neighborhood hikes, admiring all the outdoor staircases in the Sunset district. What if I tried my hand at drawing the stairs? I could combine my fondness for these stairways with a desire to learn the Procreate app.

As of yesterday, I’m on Day 25/100:

It’s satisfying to work hard at something and see tangible bits of progress. But mostly, I’m enjoying the unexpectedly meditative nature of this experience.

Finding Hygge Amid COVID

hygge hyg·ge / hew-ga / hoo-ge

a feeling or moment, whether alone or with friends, at home or out, ordinary or extraordinary, that is characterized as cozy, charming, or special. regarded as a defining characteristic of Danish culture.

There’s nothing like a global pandemic to put life into perspective. While we are doing our part and hunkering down, I’m compiling my “COVID-19 Hygge List.” Given the current recommendations for social distancing, and our personal responsibility to the global community to “flatten the curve,” this list of feel-good activities contains only individual or closed-network ideas with my own family, and the only “going out” involves the outdoors away from others.

  1. Curling up with a good book (my current faves are Glennon Doyle’s Untamed and Peggy Orenstein’s Boys & Sex )

  2. Listening to Coffee Break French podcast (goal: fluency by summer! One can dream…)

  3. Allowing my kids to enjoy lordagsgodis (Saturdays only!)

  4. Enjoying Nutpod creamer in my coffee (so much creamier than almond milk)

  5. Going for a hike, but with an end goal in mind (very satisfying)

  6. Getting additional sleep with my weighted blanket (seriously, don’t we all want more sleep?)

  7. Practicing laughter yoga with my kids (silly, joyful, and easy to do)

  8. Baking, baking, baking! (My pie dreams are inspired by the beautiful art of Lauren Ko)

As others have said, while it’s tough to stay in and not be with others, it’s the least we can do to during this global crisis. Find yourself some hygge during this time.

Pie #1 was super fun to make but not a success, which just means we need more practice!

Pie #1 was super fun to make but not a success, which just means we need more practice!

Larger Than Life: Hon. Mark G Farrell

Dad loved life. He was a connoisseur, passionate 110%– dad believed in going big or going home.

He appreciated everything, lived in superlatives. He was the most charming, the wittiest, the smartest, the most fun- to keep up with his banter and earn a laugh was the ultimate prize. I can hear it now- that booming, generous, genuine laugh- head thrown back, crinkles at the corners of those clear blue eyes. Dad really was larger than life.

First there’s the wine. I remember when this appreciation started, particularly the awkward “label requesting phase.” He so wanted to know everything about his wine. He’d often—to our chagrin, and with total confidence—ask the waitperson or server to carefully steam off the label so as to not rip it and so he could add it to his wine journal with tasting notes. As the years progressed, he became more and more sophisticated a connoisseur and with each subsequent daughter’s wedding friends likely enjoyed a better vintage. At his 60th birthday party, he impressed us all by correctly identifying in a blind taste test nearly every grape, region, and year… on his way to becoming that level 1 sommelier.

Incidentally, when he woke from his second surgery, we asked Dad if he needed anything. He looked at us with all seriousness but also a twinkle in his eye and said, “I know it’s not possible, but maybe a nice bourbon or a glass of pinot?”

Dad’s love of all things extended to food. Whether it was a high end steak, homemade meatloaf, or a pastry- and wow did that man love his bear claws– whatever it was he’d roll his eyes with pleasure and proclaim it the best. He loved dinners out and never passed up the opportunity to stop at Loughran’s Bar for a “quick bite” aka an update on the political scene.

His connoisseurship for all things nice extended to clothes and jewelry. We often joke (especially in our family with an Italian son-in-law) that while Dad may have been so proudly Irish, he sure wore his jewelry like an Italian. He was never without his UB class ring, wedding ring, claddagh, and MGF ring; and at least two bracelets and probably a few necklaces including his gold cross and the St Thomas doubloon. He believed in the meaning of these things and wore them all for a reason- to honor, protect, and celebrate.

Dad loved people. He never met a stranger- always found a way to connect through shared interests, humor, and wit. He was so compassionate and empathetic. But the thing that was most “dad” was that he knew someone everywhere. Literally, everywhere. His reputation and his relationships preceded him. No matter where we went there was a connection that resulted in a free round of golf or a bottle of wine at dinner or a behind-the-scenes tour. People went out of their way for dad because he went out of his way for them. 

Golf was a backdrop for Dad’s whole life. From caddying as a teen to achieving an excellent handicap and patiently coaching his sons in law out of a sand pit, he loved the game that challenged him and brought him together w friends, family and even occasionally famous golfers like Lee Travino, Tiger Woods and Arnold Palmer. He spoke with such joy about the times with his golfing buddies in their eponymous Derelict Open- for the past 30 years.

And Dad loved to party. Any excuse to be social, joke around, surround himself and share moments with friends. He walked into a room of people like a kid on Christmas. At my parents’ annual Kentucky Derby party, Dad made sure you always had a drink in hand. The ultimate parties for dad were the weddings. He officiated many a friends’ nuptials, and no one could cut a rug like him. As your dance partner he’d hold your hand up high in his dear way and press his scratchy cheek to yours and sweep your legs around the dance floor. Onlookers would say he tossed us about. He made you feel joyful and beautiful. We might bump into others but that didn’t matter- he owned that dance floor. I’ll never know a better dance partner. 

Dad was a voracious reader, a lover of bookstores, a history buff. There are not enough hands or fingers to count the number of trivial pursuit games in which dad had dozed off but woke up at just the right moment to shout out “the battle of the bulge” or some similar, arcane (yet correct) answer. And for all that knowledge, all that data, all those degrees and honors… He also held firmly to so many endearing beliefs that had little actual basis in fact. I remember dad urging us to unplug the hairdryer so we didn’t “burn the house down”… or reminding us to grab a sweater when it was 80° out because it was “pneumonia weather.” And my personal favorite- as I’d be heading down the stairs and out the door to a party- “don’t forget to eat some bread – it’ll soak up all the alcohol.” Words of wisdom, which were really always- and obviously- words of love.

Funny Guy

My dad’s disease has progressed to the point where treatment isn’t an option and he’s now in hospice care at home. It’s been a super sad and reflective time, but also surprisingly light and full of gratitude. I’m so impressed that this amazing man continues to show us his wit, his strength, and his love.

Yesterday as mom and I were trying to adjust him in his bed- which involves us lifting 180 lbs with a bedsheet- I look over at him and he’s got his hands in a prayer, like, “here we go…dear god, don’t let them drop me.” There was a slight twinkle in his eye.

And on Saturday as mom was trying to give him his medication, he was actively pursing his lips. I lovingly called him a “stubborn piece of shit” and he grinned.

And then when I was helping him change his shirt, I bumped his elbow on the bed rail and he rolled his eyes at me and smiled as if to say, “novice!”

I love that even without many comprehensible words his personality and wit are as fresh and quick as ever.

He knows what’s going on and he is sad at times, but he continues to thank us and express his love. Yesterday he was tapping his chest and I asked him what was going on, and he said “I’m celebrating.” And then the times I’m holding his hand- he does a little bunny nose twitch. I’ve realized that his nose itches but rather than separate from my hand to rub it, he just tries the wiggle.

My favorite thing, though, is how much he still appreciates his food. He’s not eating much but every time we give him something- whether chocolate ice cream or a lemonade- he rolls his eyes and says “wow!” Or “my god!” As if it’s the BEST THING HE’S EVER EATEN. His love, gratitude, and humor put everything in life in perspective.

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Humor in the New Normal

Dad is recovering from his third brain surgery in 18 months. it’s crazy to think how different things are now than a year and a half ago. Brain surgery then seemed like a big deal. Now it’s beginning to feel... rote.

I remember where I was when I heard; walking east on Taraval St. towards our house, the day after Thanksgiving 2017- a carefree family hike to the ocean and back. That was the day I learned he had cancer.

Fast forward to the present and he has already beat the average life expectancy for glioblastoma (average is 13 months after diagnosis). I think we were all starting to believe and behave as if he might be the exception to the rule. But then he started losing words and comprehension, and they found (and removed) another tumor in January and now again in May.

It’s hard to see this formidable man— this social, extroverted guy with the expansive vocabulary and the drive to succeed— struggle with communication. It even feels like a betrayal to write these words.

Friday’s surgery was as much of a success as it could be. He seems clearer, can speak in longer sentences, more “himself.” And his humor is back, a little. When my mom gave him his [small] cup of hospital ice cream, he started making jokes about it being perfect for a very tiny character and Hobbit references ensued.

As his family, we have also had to find humor in his condition. Which again, feels like a betrayal at first... until you realize that in the new normal, one still needs levity to balance the pain.

When he first woke from surgery, we asked him if he needed anything. He said, groggily but in all seriousness, “I know it’s not possible, but I’d love a nice bourbon or a glass of Pinot.” (Um, Dad- we we’re thinking more along the lines of a cup of water or a blanket....)

And then it was the fixation with his sinuses. Every time his neurosurgeon or nurse asked him how he was feeling, and he’d motion to his eyes and nose saying, “I’ve got some congestion here.” And we’d giggle, as he basically referenced the pain equivalent of a paper cut instead of his BRAIN SURGERY.

I guess that’s why they say laughter is the best medicine.

Two days post-op, with his grandson. 

Two days post-op, with his grandson. 

Beginning, Again

I’ve wanted to be a writer since I was a kid. Back then there were effusive journals and terrible poems and other miscellaneous surges of inspiration. And now in my 40’s I still want to be a writer when I grow up. 

In the past few days, I’ve written two blogs and started a few others. I’m getting more comfortable with this “Shitty First Draft” idea (if you aren’t familiar, it’s Anne Lamott’s acknowledgment of that messy version everyone must suffer through en route to a good piece of writing. Also, please please please read her book Bird by Bird. It’s on my Top Three Books Of All Times list and truly is not just an instructional for writing but for life).

I’m also just now starting to write for me- no one else. Though lets be clear, I’m quite thrilled you’re reading this, and I’m also nervous you won’t like it. But I’m more pleased with myself for taking a step towards my goals than I am anxious about your reaction. Yay, personal growth! One point for me.

It’s funny how— for years— I’ve had two hours each week set aside for writing. I’ve pictured sitting at a cute coffee shop (I can hear my husband now— “well, as long as it’s cute!”) with a nice almond milk latte, warm and comfortable clothes, my laptop, and the inspiration of community around me. Or in my living room; fireplace warm, a candle lit, glass of wine in hand, solitude.

In reality: I’ve used this designated “writing time” twice. In 2.5 years. Just to be clear that’s 2 out of approximately 130 Sundays. That’s right, I’m an overachiever.

Turns out not much was right about that mental picture of my writing space. What I really needed was a sterile hospital waiting room with terrible Wi-Fi and stiff blankets and mediocre coffee. And perhaps my sisters or family near me, reading— or perhaps no one around at all.

My personal learnings from this week are not complicated but they feel profound:

  1. Stop overthinking it. Just write. For yourself. Tell your story. From where you are now.
  2. Remove all comforts; it’s the discomfort that helps. Remove all preconceptions; it’s the conception that helps.

And so i’m beginning. Again.

The Night Nurse

It’s 6:45 am and Dad’s sleeping soundly, after having been up with some pain in the middle of the night. He’s recovering well, considering, you know, the brain surgery and all. It’s day three post-op; removal of a second Glioblastoma tumor. We await MRI and test results today to learn more.

#####

Yesterday morning was good- Dad seemed himself for the first time in a while. He was telling us about his night nurse and how “strict” she was as we filed into his ICU room; embellishing and entertaining us with a German accent and Quite Serious Nurse impersonation (“you vill pee now!” and “I vill give you shots ven I come back!”). The more we laughed the more Dad joked- such a gift. (Turns out the nurse was not only not German, but also just efficient and professional. Having grown up with a German grandmother and mother, Dad’s humor is especially dear).

But it made me realize again what makes Dad so... Dad. He’s focused first on the person- he wants to connect with you. He wants you to want to connect with him. He wants you to be happy, content, safe. He’s not listening to your words until he makes sure you are all of those things. If he can’t get a read on how you feel, well, then, apparently you become a strict [and German] night nurse.

Every time I leave the ICU he asks where my coat is- reminding me it’s freezing outside (yes, thanks Dad- we’re pretty aware of the 17 inches of snow, sub-zero temps, and state of emergency in buffalo).

When my sister grimaced and shifted positions in her chair (having hurt her back a few days ago), Dad stopped the entire conversation to make sure she was ok.

And after dinner last night, he asked us what we were going to have... for dinner. He’s not remembering our answers but is persistent in making sure we are comfortable and well-fed, from his hospital bed.

I remember being 17-ish and heading out for the night- the questions from mom were of the who/what/where variety and from Dad it was, “Do you have a coat? It’s pneumonia weather out there” and “Have you eaten? Have some bread, it will soak up all the alcohol.” (And also, “Do you have enough money? Here, take this just in case” as he slipped me a $20). Concern for your wellness, matched with just the right amounts of worry and love. 

#####

The sun has come up as I finish writing. Dad’s still sleeping. Hoping today is even better for him. And I’m eager to hear the stories of the Night Nurse when he wakes.

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The view from 8th floor ICU Waiting Room at Roswell Park Cancer Institute. 

Togetherness: In the Waiting Room

Coffee cups, glasses cases. Crumpled napkins and half-drunk water bottles. Comfy socks and books and... us. Here, together.

#####

I was just in Buffalo last week. Here to be with mom and dad and for the kids to get special time with them. When we landed home in SF, Oliver bawled. He loves his grandparents so fiercely. He loves them with the force of a million loves. He loves them so much that he secretly wrote this note the next morning en route to school:

“Grandma and Grandpa, I really miss playing all those games with you, and the nerf, and the cheese, and the movies, and the gym, and Sear, and Niagara On The Lake, and the brownies, and the snow, the banana bread, and going to buy stuff, and the sno…

“Grandma and Grandpa, I really miss playing all those games with you, and the nerf, and the cheese, and the movies, and the gym, and Sear, and Niagara On The Lake, and the brownies, and the snow, the banana bread, and going to buy stuff, and the snoball fight, and the thing for the sled, but most of all I miss...”

“... YOU. I love you GUYS A LOT! I love you, love Oli [sad face]” 

“... YOU. I love you GUYS A LOT! I love you, love Oli [sad face]” 

When we landed in SF I got the text from mom, “please call me when you can.” And I knew; the MRI results were bad. Dad had been more confused, losing words and conversation threads. They found another tumor and significant brain swelling. Surgery would be scheduled asap.

And so I’m back. Buffalo didn’t get any warmer in the last 5 days. But it’s warm here, in this space, with these people. My people. My brother in law said it well- my family knows how to rally. I couldn’t imagine it any other way; there’s no world in which I’m not here. So we’re here in togetherness, waiting.

#####

Watching her face is hard.  She nods, expression intent, neutral. We hang on every word, every mouth or eye movement, for a clue. “Ok,” she nods, “thank you.” She hangs up; all is well and they are nearing the end of his surgery. Mom is strong and fragile at the same time.

Meanwhile the emails keep coming in. Prayers and thoughts. Offers of support. The kindness of friends and family is overwhelming in the best way. 

And so we wait. In the Waiting Room. We drink our coffee, we remove our glasses to wipe a tear. We eat and share silly cat videos. We discuss topics like fear and belief. And we read; solitude in togetherness.

 #####

Update: Dad’s surgery went well. He’s in recovery for the next few days. More waiting, but it’s grateful waiting.

My Turf Top Ten

So... Turf  is on my mind. I’m a little obsessed (which makes sense when you hear the full name of this app... "Turf: Outdoor Addiction"). Here’s why you too might consider giving it a try:

10. On average, I’m happily clocking an additional 5,000-10,000 steps per day on Turf. 

9. It’s outdoors, its active, and though it uses tech, that’s not the focus at all. You can Turf by running, walking, and biking.

8. I now have a “destination” or a “reason”  for my workout. Makes me feel quite accomplished- for the workout itself AND the zones taken.

7. It’s creating community among players; for me, that's encouraging fun activity and conversation with my coworkers. 

6. I'm seeing parts of the city I’ve never seen before; intriguing nooks & crannies, special places, and new views. Everything from witnessing a red tailed hawk swoop down on its prey to hearing the Accordion Guy at the Palace of Fine Arts. It’s not your same old treadmill run or even your usual outdoor loop.

5. It’s something healthy and competitive to do, even with just 10-15 minutes of free time.

4. Though competitive, it’s also collaborative; the exchange of zones between players (aka “taking a zone”) is necessary for everyone to gain more points. Friendly competition, what’s better than that?

3. It’s a fun (and cheap & cheerful) thing to do with the kiddos. For them, it’s better than a hike (my son says it’s a great “trick” to liking hiking).

2. Ok, maybe I only have 9 reasons, but...

1. It makes me happy. Try it! 

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Those Who Wander

“Not all those who wander are lost.” -J.R.R. Tolkien

(A few of my August wanderings, while playing Turf).

A fresh pair of Hokas and a spring in my step, a solid podcast choice, a new route. Today I saw the Sunset [district] from a new angle. It’s surprising to me after 20 years in SF. And that’s been the case with the rest of the city; how lovely and lucky to have an excuse to see and see again. 

You’ll Want To Try This: Turf Game

Calling all outdoors lovers, early adopters, and anyone who enjoys a healthy dose of fun and competition. You’ll want to try this.

Two years ago, at the suggestion of my brother- and sister-in-law, I joined Turf. My in-laws live in Stockholm, where the Turf app is extremely popular. There are thousands of users getting outdoors and playing this game every day in Sweden and the neighboring countries. While we were in Stockholm, I started playing as a way to see the city.

For the past two years I’ve only been able to play the game locally (in SF) against Swedish Turfers who happen to be visiting San Francisco. As of this week, however, the Turf Crew has made magic happen and the Turf app is available in the US App Store (thank you Turf Crew! You rock!) at www.turfgame.com 

So far, I’ve convinced my husband and a few game coworkers (pun intended) to give it a try... and the past two days have been SO. MUCH. FUN. I’ve always been an outdoors person; I love trail running, hiking, even walking in my neighborhood for fresh air, exercise, and the time to myself or with friends. But Turf has encouraged me (I’d even say incentivized me) to take quick 5-10 minute breaks to “take a zone” and come back to work refreshed and delighted. (Sidenote: I never use the term “delighted.” But this is just that – delightful.)

Ok- so what does this even mean- to “take a zone?“ A zone is a small area, perhaps 25‘ x 25‘, and when you step into that location you are “taking a zone.” By taking a zone, you “own” that zone (albeit temporarily) and are allocated points accordingly. If you take a “neutral” zone— one that has not been taken by any other “Turfer” yet— you’ll receive a 50 point “neutral bonus.” In addition, some zones allocate a point per hour gain, for as long as you hold the zone. And that’s where the fun comes in – people can steal your zones. Other Turfers are also competing with you for points, number of zones, and medals. Medals can be earned for all sorts of different reasons, like taking a bridge or aquatic zone, or holding onto a number of zones at the same time.

As with anything new, it’s easier to understand through experience than through someone’s description.* But when asked why I play Turf, I share that I’ve been logging at least 5,000 extra steps per day all week (now that I have some local competition in this game!). It’s also just plain fun, competitive in the right way, and incentive to be healthier. Some people ask if it’s like Pokémon Go. Maybe...ish? While I’m not personally interested in catching an imaginary animal, I’m obsessed and delighted (!!!) to take zones. There’s a reason it’s called Turf: Outdoor Addiction. So download the Turf app and give it a try. See you out there, Future Turfers! Lycka till!**

 ——————-

*I’ll continue to post some information in the next week on how to Turf, including a rudimentary tutorial, and more on all those fun little symbols on the bottom right of your turf app.

* *Good luck! (In Swedish)

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Turf in Sweden: yellow dots are neutral zones, red dots are zones taken by a Turfer. Over the course of a round, turfers try to gain as many points and zones as possible. When a round ends, winners are announced and points/zones are reset for the next round. 

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The Bay Area has quite a few zones. The green person is “me” and green dots are the zones I’ve taken. Red dots are other Turfers who have taken zones.

 

It takes approximately 30 seconds to take a zone (so you have to be standing still in that area). After taking a zone, the area is blocked to other Turfers for a short while. The longer you play, the greater your “blockage time” and the lesser your …

It takes approximately 30 seconds to take a zone (so you have to be standing still in that area). After taking a zone, the area is blocked to other Turfers for a short while. The longer you play, the greater your “blockage time” and the lesser your “takeover time.”

Food Allergies: Not a Joke, Peter Rabbit

As a food allergy parent, I don’t love seeing a life-threatening disability being the brunt of a joke. However, I can handle (or even appreciate) jokes if they’re accompanied by intentional lesson-learning or responsible use of media influence. Sony has done neither of those things in the new Peter Rabbit movie, and instead perpetuates misconceptions and miseducation about food allergies and anaphylaxis.

As noted by Kids with Food Allergies (a division of Asthma and Allergy foundation of America) a character in the movie is intentionally attacked using his allergen (food allergy bullying), goes into anaphylaxis (a serious allergic reaction that is rapid in onset and may cause death) and requires epinephrine (a short-term, rapid medication but it is not long-lasting- buying time until medical help is sought). After his “epi-pen” is administered the character continues as if fine, instead of being rushed to the emergency room for additional medications/monitoring as would happen in real life. There’s also a scene in which they state, “everyone has allergies nowadays,” implying that allergies are exaggerated or overstated. Or worse, a choice.

If you’re thinking, “Those food allergy parents and kids are such special snowflakes” then I think you’re missing a piece of information. This isn’t a choice, and it’s not an exaggeration. We don’t wish to have this disability in our lives. But we do, and precaution and education are our best friends. Our greatest fear is not actually the food allergy itself – it’s people who don’t understand the food allergy and therefore endanger the lives of our kids. YOU are our greatest fear.

If you’re thinking, “ these people should just relax, it’s not such a big deal” then I ask, why are you so worried about what we are worried about? If it doesn’t affect you, stay silent. It’s OK to not contribute your opinion if you’re not affected.

If you’re thinking, “it’s just a joke, where’s your sense of humor?” consider that triggering past traumatic incidents— whether for the child or the parent who has experienced the near-loss— is never funny. Making light of something serious trivializes its importance.

If you’re thinking, “wow, everybody has to be so PC these days” know that it’s not about being correct, it’s about being kind. It’s about the underlying intent; is it to hurt? Or is it to help? Sony, or any organization in a position of influence, should use their influence to help.

And, lastly, If you’re thinking, “she’s so over the top with this allergy stuff,” consider this- I used to be you. I was once someone who thought other people’s allergies were annoying or over the top. And then I was blessed with a food-allergic kid. It’s made me a much more empathetic person. No joke. 

Further Reflections on Anaphylaxis

This past week has been a blur; a swirl of emotions and learnings. On Sunday, Colten (my older son) had an anaphylactic reaction (he's fine now- read previous blog post) and I've been so grateful for the support of family, friends and even friends-of-friends in the wake of the incident.

The biggest thing I've come to realize on a very personal level is 1) I'm so glad for all our preparation and 2) there is a difference between theoretical preparation and practice and in-the-moment, crisis management. I know this well in my professional life, but it's different when it's your child... a piece of your heart.

So I'm driven to extract as much learning as I can from the situation. I'm currently reading Adam Grant's "Originals" and really identify with the "defensive pessimism" he illuminates- deliberately utilizing/thinking about an emergency scenario in order to consider the worst case possibilities, drilling into all aspects in order to avoid disaster.

Here's what has emerged in sharing my story with friends and family- additional ideas and reflections:

1. "Find My IPhone" is Your Friend

We had this function enabled on Colten's phone, but didn't think to use it to locate him. What a stress-reducer that would have been as my husband combed the Golden Gate Bridge for our child in an emergency. And in general, a good thing to remember as he gains independence in his teen years.

2.  Never Too Soon for the Epi-Pen

I'm not a medical professional, and I'm not giving medical advice- I'm sharing what I have learned. The doctor in our emergency room clearly reinforced for us to use the epi-pen at the first signs of anaphylaxis, (even if you're wondering if this is the right time). Not to wait for additional signs. The last thing I want is to wish I had used it or used it earlier. The side effects of epinephrine are preferable to the alternative.

3. More Diligence Around Ingredients

Colten asked if the cookie had nuts, and the adult with him called the friend she bought them from, whose daughter was the baker. The answer was "no, no nuts" however the cookies had been mislabeled. It's making us rethink our family "rules" regarding ingredient questions; what kind of labels we trust, and/or how we communicate the repercussions of our allergy ingredient questions to those who are less familiar with food allergies.

4. Find a Teen Food Allergy Support Group

We've talked with Colten a lot about his allergies. However it seems more obvious to me now that he needs to talk with peers who have experienced this, and who understand from a first-hand perspective. We'll be looking into this in the coming month to see if something exists near us.

Here's to sharing learnings... onward, Allergy friends!

A Scary Day in the Life with Food Allergies

I'm passionate about food allergy awareness- I just had new awareness yesterday. Sharing this [very long] story in the hopes that it helps others as well.

I consider myself and my family extremely well-educated regarding food allergies. Even so- yesterday, Colten had an anaphylactic reaction; his first since he was 1yr old. He's ok now, but it was hands-down the scariest day of our lives.

On a Boy Scout hike with his patrol group, he walked across the Golden Gate Bridge. They all had a cookie to celebrate their success. Colten asked if it had nuts and was told no... it turns out we later confirmed there was walnut in the cookie. There are a number of things that went right and went wrong from this point on.

Colten called us and left a message to say he ate a cookie and his throat was itchy. We didn't hear the phone since we were at an event. Matt picked up the message a little later, called back- but no answer. He immediately started driving to the bridge and I headed to the hike meeting location.

Along the way, neither of us could reach him nor did we know exactly where he was along the hike. I was texting him "Colten are you ok/ Colten take your epi-pen/ Colten have a grown-up call 911." Still no reply. I tried another mom whose son was on the hike. No reply. I called 911 and started to let them know that my son might be having a reaction- and got a call from Matt that Colten was ok. I hung up with 911. A minute later, Matt called back- Colten had thrown up (second symptom, confirming anaphylaxis) and he'd instructed Colten to use his epi-pen. I called 911 again, staying on the phone (through the operator asking "what street is Golden Gate Bridge on?" Really?)

Arriving at the GGB Welcome Center, there were thousands of people- it was a sunny, 70 degree day in SF. Tourists everywhere. I'm screaming his name... I finally spotted them and ran over, with 911 arriving a few minutes later. In the ambulance, they set an IV, administered more meds, and monitored him. Seeing him stable, I finally took a deep breath. At the emergency room he had more steroids and fluids to prevent an allergic rebound (a second reaction that can occur when the epinephrine wears off). He was released a few hours later from the hospital- all is ok.

The most important thing about the day was that Colten carried his epi-pen. I can't stress that enough- it saved his life. Everyone (EMTs, ER staff) gave him huge props for carrying it on him- I was surprised (seems like a "given" to me) but apparently most anaphylactic patients in the ER either don't carry it on them, or had it but didn't use it. We were also very lucky that the adult with him helped to administer the epi-pen (he was too scared and unsure). Also, Colten called us when he first felt an itchy throat, giving us time to get to him and call 911. Lastly, when in the Presidio in San Francisco, I know to call 415-561-5656 from a cell phone for emergency services, not actually "911" unless from a landline (those calls go to CHP).

That said, there are some things we'll do differently moving forward. Colten called us once, but he didn't know to keep calling us until we picked up- he now knows that. Also, while he suspected it was a reaction, he didn't know that the "super itchy throat" was the beginning of anaphylaxis. He took some Benadryl- which is a step that gets mixed reviews- it slows the reaction but it can also mask anaphylaxis (making you think you're ok).

Also, we as parents have been very reliant on Colten now having a cell phone. And our tween/teen has been so independent and mature lately- we didn't get phone numbers of others on the hike. That's a mistake we won't make again. Knowing your child is in a life or death situation and not being able to reach him ("sorry I didn't pick up mom, but it was so loud on the bridge") is not a feeling I want to relive. In my mind I replayed allergy horror stories I've recently read, over and over.

In debriefing, Colten has also recognized another symptom he had at that time. He felt "worried" (which isn't an unusual feeling for him- but in this case, was likely a symptom- many say they feel "weird" or "like something bad is happening" during anaphylaxis).

He's fine now- happily granted screen time last night to rest and recover. He's headed to the Allergist today for a follow up appointment. We are lucky and blessed.

Non Compliance

2017 kicked off well, with a lot of hiking, yoga and personal training. In mid-February, though, I did a hard hike on Mount Tam and found myself unable to walk on my right foot a few days later. The suspect? A stress fracture in my cuboid bone (the outside of foot below ankle bone).

I started with a cast on my foot, but it bothered me to the point I ask them to take it off, and promised to wear a walking boot all the time. And I do, although i take it off to drive... and sometimes at home... 

In a walking boot, I resorted to the only fitness option remaining- swimming. It was a hard sell to my brain, but after 2 or 3 times I was back in love with a sport I haven't done since high school. It's been about two months now, and I'm still digging the swimming. It's also made me realize that WOW, DO I MISS WALKING! It's funny how when I was hiking, i missed running. Now that I only swim, i miss walking. 

My sister texted the other day to say she broke her ankle. The doctor asked if she'd really wear the brace since "she had a history of non-compliance." I looked down to see my bare foot and the boot on the floor....non-compliant must run in the family.

Bad Knee

There were three surgeries years ago- ACL, kneecap, and a cleanup procedure. Having made it through and still able to play soccer, I never looked back. Nearly 20 years passed- and running became a huge part of my life. 10Ks, half marathons, and then a marathon- I was hooked. Minor afflictions like sprained ankles and plantar fasciitis couldn't keep me down long.

That was, until this year. On a sunny day, the weird tightening and stiffness I'd been experiencing (and ignoring) for two years turned into a run that felt unstable... so unstable that I thought I'd re-torn the ACL.

"We'll get an x-ray," said the doctor. "Oh, I think I need an MRI," I said wisely. After all, it was my knee. "Well, I am pretty sure you have severe arthritis," says Doogie Houser. I brush it off- this guy has no idea what he's talking about.

Turns out he did- those surgeries mean I now "have the knee of a 75-year old" (just what any 40-something old wants to hear). This past half a year has been a journey of me learning how to be active when running is no longer on the menu. Swimming? Too wet. Indoor cycling? Too indoor. Walking and yoga seem to be the answer, for now.... though i still dream of running.

Opt Outside for a Digital Detox

Re-posted from my blog piece on www.ymcasf.org

Recently, my kids and I were hiking in the Marin Headlands, from the Point Bonita YMCA to the graffiti’d overlook atop the Point Bonita Lighthouse.  At the end, the narrow coastal path opens to a 270+ degree view of San Francisco.  Every time we see this, we stand there in awe.  And as someone who loves capturing moments, I took advantage of the great panoramic photo and asked the kids to smile.  My oldest balked:

“Mom, we're on a hike. Do you think you can put your phone away?”

Ouch. It’s hard to know when to document the moment and when to be in the moment, but you can count on your 12 year old to clarify this for you. My kids know I’m a stickler about technology having a time and a place, and they are more than happy to remind me when I’m not aligning with my own values.

This Friday is another opportunity for that digital detox: Opt Outside. After the food and family and friends—and instead of spending time indoors or online—consider joining the national movement to take time for personal wellness through connection to nature. We know that time outdoors has all kinds of health benefits like stronger bones, better eyesight, reduced risk of obesity and diabetes, longer attention span, increased creativity, and better relationship skills, to name a few—and the focus on “green time” instead of “screen time” might be just what we need.

We came up with a list of our favorite things to do when we Opt Outside—join us and post your photo (your one tech moment!) to celebrate with #OptOutside #DigitalDetox #HealthyLiving

Five Ways to #OptOutside with the Family This Friday

1. CHOOSE YOUR OWN ADVENTURE  

Sign the REI #OptOutside pledge to get outdoors and head to a state or national park or recreation area for the day.

2. THE HIKE DISGUISED AS SOMETHING ELSE

Sometimes it’s hard to motivate, and my suggestion of a hike can be met with groans if the kiddos are sleepy or lazy.  But suggest a scavenger hunt using a Polaroid camera, or bring a notebook to document your findings (bonus points for a waterproof notebook like “Rite in the Rain” and sharpies)… and suddenly this hike sounds like loads of fun. We’ve also spiced up our hikes with camp songs and the Yelling Game (someone says go and the players can yell for as long as they can run- great silly fun and a little extra lung workout!). For the artistic, use the hike as inspiration to sketch or doodle along the way. The Presidio’s Andy Goldsworthy installations are a great way to enjoy large scale nature art while hiking.

3. GET YOUR ZEN ON

Hike to a nearby labyrinth or make one! If you are in the Bay Area, our favorite is the Labyrinth at Land’s End in the Golden Gate National Recreation Area. Or find one near you! But you can also make your own anywhere out of rope, stones, sand or leaves (and if at a park or common space, just remember to leave the area as you found it when you’re done). Labyrinths have been used for hundreds of years for relaxation, meditation and for fun.

4. RALLY THE GROUP

Feeling like some good old-fashioned casual outdoor fun? Invite some friends (and friends of friends!) to a nearby park for a play date with Kickball, Capture the Flag, Ultimate Frisbee, and Sardines. (Sardines is our current favorite- it’s the opposite of Hide and Seek. The “It” player hides while the group members (seekers) close their eyes and count to 30.  Each seeker player then tries to find “It” and quietly join him or her in the hiding spot. Pretty soon everyone is packed in like sardines, and the last player to find “It” becomes the new “It.” Playing this game in the old military bunkers at Fort Barry was a huge hit with my 8 year-old son and his friends- you can park at the Point Bonita YMCA and walk southwest to Battery Mendell or northeast past the Rodeo Beach overlook to Battery O’Rourke for some great Sardine-quality bunkers.

5. EXERCISE YOUR RIGHTS

Challenge your family to experience a number of the activities on the San Francisco Children’s Outdoor Bill of Rights this Friday, or complete the entire list throughout the weekend. Next on our list for achieving #1 (“exploring wild places”) is the Wave Organ along the Marina Boat Harbor in San Francisco.  The Bill of Rights is also a great way to appreciate the nearby nature in your own neighborhood even if you only have an hour or two.

Like many, my family is making the commitment to get outside this Friday and I’ve promised the kids they’ll only have to suffer through one photo (or perhaps a few, depending upon their squirmy factor) to document the day. Have fun and be well outdoors!

Nearby Nature: Headlands Magic

Re-posted from my blog piece on www.ymcasf.org

One day last year, we were on our way to the Marin Headlands for a family treasure hunt program hosted by the Point Bonita Y.  From the back seat of the car I hear:

Kid #1: Wow this is pretty. Do they have electricity here? 
Kid #2: Hey, look- suburbs!?!?
Kid #1: Boy, this place is a long way from Safeway. 

My boys are city kids; that’s for certain.  But they’ve been raised by a trail running/hiking/former camp director of a mom, and a backpacker/camping enthusiast of a dad.  And they’ve quite literally grown up at a Y within a national park.  The Presidio is where they come after school, on weekends, and daily each summer.  And yet, the Marin Headlands, contiguous to the Presidio and part of the Golden Gate National Recreation Area, felt foreign and mysterious to them.  Like maybe there were no modern amenities or groceries available.

And then there was this other day of hiking in the headlands:

Oli: Mom, can we just stay here all day? 
Me: Sweetie, you have futsal practice today. [Futsal/indoor soccer is his favorite sport]
Oli: Ok, well then can we come right back after futsal? And when do we get to sleep over here?  I think there should be a “Kids Night Out” here.

My kids can’t get enough of the magic of nearby nature. The Marin Headlands are just 12 minutes’ drive from the Golden Gate Bridge, but it feels like worlds away.  The Point Bonita Y is launching a new Family Camp program here, and I can’t wait to see my kids and others experiencing the wonder of the national park.  Stay tuned!

~~~~~

Starting in November, Family Camp Weekends are available to the community and Y members as an extension of “Let’s Move! Outside,” a national initiative and collaboration of the YMCA and the National Park Service. Along with local partners the Golden Gate National Parks Conservancy and the Presidio Trust, the Y and NPS are providing hundreds of youth and families with meaningful opportunities to play, learn, serve and work in our national park.  No supplies needed- just bring yourself and your family and your sense of adventure.